North East Lincolnshire patients with Parkinson’s disease receive new services

NHS North East Lincolnshire Clinical Commissioning Group (CCG) is working with a range of organisations, patients and carers to improve local Parkinson’s services.

The last four years have seen the recruitment of a local consultant neurologist, Dr Lazarus who works jointly with Dr Shankar Kamath, Consultant Physician. A Parkinson’s disease nurse specialist providing a range of support to patients, carers and professionals in the local area has also been recruited.

Dr Lazarus, Consultant Neurologist, Northern Lincolnshire & Goole (NLAG) NHS Foundation Trust said:

"The service has indeed come a long way from inception and now provides very up to date comprehensive, diagnostic, therapeutic and rehabilitative services for patients. The service goes way beyond just making a diagnosis and offering treatment but offers services which try to help patients to not only deal with the disease but live with it as comfortably as possible”.

A new Parkinson’s education programme has been launched named the ‘Living with Parkinson’s Education Programme’. The aim is to help patients and their family, carers or employer understand and manage symptoms related to Parkinson’s. 

The programme is a free six week course of an hour and a half sessions. Each week the programme is delivered by a range of qualified professions such as nurse specialists, therapists, and Parkinson’s UK information support workers.

The ‘Community Parkinson’s Disease Nurse Specialist Clinics’ used to be based solely in the hospital but have now widened their outreach and are based throughout North East Lincolnshire. The clinics recognise the need for care closer to home and patients now have a choice on where to receive their specialist nurse review appointments.

For more information on these new services please contact Tracey Osborne, Parkinson’s specialist nurse on 01472 302592

Additional Information

The clinics available for the Community Parkinson’s Disease Nurse Specialist Clinics are:
• Taylors Avenue Medical Centre, Taylors Avenue, Cleethorpes
• Scartho medical Centre, Springfield Road, Scartho, Grimsby
• Pilgrim Primary Care Centre, Pelham Road, Immingham
• Diana Princess of Wales Hospital, Grimsby
• Hope Street Clinic, Hope Street, Grimsby (drop in session every first Wednesday)

Case Study

One patient that attended the ‘Living with Parkinson’s Education Programme’ was Peter Mawer, a Housing Support Worker for L&H Homes in Grimsby. After his wife recognised some of his symptoms he was encouraged to see his GP who promptly referred him to Grimsby Hospital and where he received a diagnosis by Dr Lazarus, Consultant Neurologist, NLAG. Peter was informed about the Living with Parkinson’s Programme by Tracey Osborne, Parkinson’s Disease Nurse Specialist. He attended the event with his wife and also his boss who was keen to understand more about the condition.

Peter said:

“The service I have received is excellent.  It was a relief to be diagnosed and knowing the range of support available for me prevented it from being a traumatic experience. My boss has been a pillar of support and he was keen to understand my condition and what he could do to support me”.

The employer also attended the programme. Brian Noble, Supervisor to Peter Mawer, L&H Housing Support Officer on behalf of L&H Homes said:

“At L&H Homes we believe that people are one of our greatest assets. After Peter was diagnosed with Parkinson’s last year we looked carefully at the readjustments that we would have to make to help him to continue working. We’ve prepared a detailed document to identify difficulties caused by Parkinson’s, such as mobility issues, fatigue, stress, not being able to drive, and how as an employer we can support Peter in dealing with them. We introduced some simple solutions like flexible working hours, clustering appointments with customers, carrying a mobile phone at all times and regular monitoring and meetings with line manager to make sure that Peter can continue to perform his role as a housing support worker efficiently. I also attended Parkinson’s Awareness Training to find out more about the condition and its effects and we’re sharing that knowledge with other staff who work with him.”

Please note it is Parkinson’s Awareness Week 7th-13th April.

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