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People with epilepsy in North East Lincolnshire are being offered the opportunity to take part in a focus group where they can highlight their needs and the information and support that would help them.

North East Lincolnshire CCG is looking to develop a programme of support and the views and thoughts of those living with epilepsy is an important element of building the right service. NELCCG want to ensure the right support and services are in place to enable people diagnosed with epilepsy to understand and manage their condition day to day.

The focus group will be held on 1st November at Centre4, Wootton Road, Grimsby, DN33 1HE, from 1.30 to 3.30pm.The group is open to adults living with epilepsy age 18 years and over, their family and carers, whether, newly diagnosed or for patients who have been diagnosed with the condition for a while.

Donna Redhead, Service Manager for the NELCCG said, “In North East Lincolnshire we want to engage with patients with epilepsy and speak to them about their needs and explore the things that will make life easier managing the condition, surrounding things such as information to support their medication, driving, working, going on holiday and other aspects of everyday life.”

She added, “Being provided with the right information can help people manage their epilepsy and it might help people have fewer seizures or it can help them to feel more confident about living with epilepsy.”

According to the charity Epilepsy Action; Epilepsy is one of the most common neurological conditions in the world. It affects around 600,000 people in the UK and this means that almost 1 in 100 people in the UK have epilepsy.  It is therefore important that the right healthcare services are designed to support them.

For further information and/or to register for the focus group please contact the Accord team on 0300 3000 563 or email nelccg.accord@nhs.net